STAR :: Social and Technological Action Research Group » Premature Infants

FitBaby

Michael — Fri, 02 Jul 2010 00:38:35 +0000

Research Team: Sen Hirano, Leslie Liu, Sunyoung Park, Natalie Rich, Sheba George (CDU), Dini Baker (EDAC/CHOC)

PIs: Gillian Hayes, Karen Cheng (CDU)

Premature birth is associated with long term health impairments including neurological and cognitive deficiencies, chronic lung disease, and altered growth patterns of lean, fat, and bone tissues. Furthermore, parents of premature infants may experience excessive stress, post-partum depression, and other challenges associated with the birth of and caring for their child.

We are designing, developing, and deploying an innovative and feasible mobile solution for collecting infant and caregiver ODLs, sharing these data with their providers, and visualizing and summarizing these data for both the parents and clinicians caring for these children. This system, FitBaby, has been shown to be helpful in preliminary pilot studies, and now we are expanding its capabilities. Candidate ODLs include length and weight of the baby, feeding and sleeping schedules, and self-reported data about infant well-being and caregiver stress. We are using a participatory design approach that includes clinicians, parents, social workers, and other relevant stakeholders. This work includes ongoing collaboration with the UCI Medical Center Department of Pediatrics and Information Services Department to overcome clinical and technical challenges in our design, development, and evaluation as well as in planning for long-term impacts to the clinical workflow.

Watch a talk Gillian gave at Microsoft Research that covers some of the autism and FitBaby work: http://research.microsoft.com/apps/video/default.aspx?id=121512

Check out our posts on the Robert Wood Johnson Project HealthDesign Blog:

The relationship between ADLs and ODLs (this one is in Spanish too!)

Are there ODL’s in Diapers?

An introduction to our team

FitBaby’s new funding from Robert Wood Johnson Foundation announced

ghayes — Thu, 04 Mar 2010 05:21:37 +0000

Project HealthDesign is a national program of the Robert Wood Johnson Foundation’s Pioneer Portfolio. They have generously funded our work on FitBaby for the next two years with a grant to PI Gillian Hayes and Co-PI Karen Cheng (one of our amazing collaborators from Charles Drew University). Project Health Design is focused on the use of ODLs to support chronic care. Here is a little excerpt on ODLs from the Project Health Design website:

Observations of Daily Living (ODLs)

Observations of daily living are sensations, feelings-thoughts-attitudes, and behaviors that occur in the course of everyday life – such as sleep patterns, diet, exercise levels, pain episodes, and mood – that are not typically part of one’s clinical record, but are critical to managing an individual’s health and guiding their treatment.

Posters to be presented at WISH 2010

ghayes — Fri, 05 Feb 2010 16:07:53 +0000

The STAR group will be busy at WISH this year with five posters! We are really looking forward to an amazing event.

Attitudes and Readiness for Adoption of an Electronic Medical Records System: A Preliminary Case Study
- Jed Brubaker, Yunan Chen, Karen Cheng, Chris Combs, Sheba George, Sidney Harrison, Gillian Hayes, Sherrie Kaplan

Heuristic Evaluation of Personal Health Records Systems
– Leslie Liu and Gillian Hayes

Sentient displays to connect people with cognitive disabilities to the digital era of social interaction
- Monica Tentori, Raymundo Cornejo, Jesus Favel

FitBaby: Using Observations of Daily Living to Improve the Health of Preterm Infants and Their Caregivers
- Gillian Hayes, Karen Cheng, Sen Hirano, Sunyoung Park, Dana Gravem, Julia Rich, Dan Cooper

Use of a Wearable Recording Device in Therapeutic Interventions for Children with Autism
- Gabriela Marcu and Gillian Hayes