STAR :: Social and Technological Action Research Group » PHR

FitBaby’s new funding from Robert Wood Johnson Foundation announced

ghayes — Thu, 04 Mar 2010 05:21:37 +0000

Project HealthDesign is a national program of the Robert Wood Johnson Foundation’s Pioneer Portfolio. They have generously funded our work on FitBaby for the next two years with a grant to PI Gillian Hayes and Co-PI Karen Cheng (one of our amazing collaborators from Charles Drew University). Project Health Design is focused on the use of ODLs to support chronic care. Here is a little excerpt on ODLs from the Project Health Design website:

Observations of Daily Living (ODLs)

Observations of daily living are sensations, feelings-thoughts-attitudes, and behaviors that occur in the course of everyday life – such as sleep patterns, diet, exercise levels, pain episodes, and mood – that are not typically part of one’s clinical record, but are critical to managing an individual’s health and guiding their treatment.

Posters to be presented at WISH 2010

ghayes — Fri, 05 Feb 2010 16:07:53 +0000

The STAR group will be busy at WISH this year with five posters! We are really looking forward to an amazing event.

Attitudes and Readiness for Adoption of an Electronic Medical Records System: A Preliminary Case Study
- Jed Brubaker, Yunan Chen, Karen Cheng, Chris Combs, Sheba George, Sidney Harrison, Gillian Hayes, Sherrie Kaplan

Heuristic Evaluation of Personal Health Records Systems
– Leslie Liu and Gillian Hayes

Sentient displays to connect people with cognitive disabilities to the digital era of social interaction
- Monica Tentori, Raymundo Cornejo, Jesus Favel

FitBaby: Using Observations of Daily Living to Improve the Health of Preterm Infants and Their Caregivers
- Gillian Hayes, Karen Cheng, Sen Hirano, Sunyoung Park, Dana Gravem, Julia Rich, Dan Cooper

Use of a Wearable Recording Device in Therapeutic Interventions for Children with Autism
- Gabriela Marcu and Gillian Hayes

Usability and Usefulness of Personal Health Records

Michael — Sun, 17 Jan 2010 03:03:48 +0000

Researchers: Leslie Liu and Gillian Hayes

Personal health records have enormous potential to improve both health documentation and patient care. The introduction and adoption of these systems however, has have been relatively slow. We conducted three different types of studies focused on evaluating PHR systems: a traditional usability evaluation, clinician interviews, and a heuristic evaluation. The results of these evaluations demonstrate that a combination of usability, functionality, and socio-cultural influences are impeding PHR adoption and use. They also demonstrate that heuristic evaluation, using modified heuristics, can be used to find many, although not all, of the challenges to use of particular healthcare technologies.

Publications:

Liu, L.S. and Hayes, G.R. Evaluation the Usefulness and Usability of Collaborative Personal Health Record Systems. CSCW Research in Healthcare: Past, Present, and Future. CSCW2010 Workshp. Savannah, GA. February 2010.

Papers accepted to CSCW workshop on Collaborative Health Technologies

ghayes — Mon, 21 Dec 2009 17:18:30 +0000

Evaluating the Usefulness and Usability of Collaborative Personal Health Record Systems

Leslie S. Liu & Gillian R. Hayes

Personal health record systems (PHR) have great potential to improve both health documentation and patient care. The introduction and adoption of these systems, however, have been relatively slow. In this work, through usability evaluations and clinician interviews, we evaluated the usability of, usefulness of, and the ability to communicate and share information through PHR. We describe the results of our evaluation, which demonstrate how a combination of usability, functionality, and socio-cultural influences are impeding PHR adoption and use.

PatientsLikeMe: Empowerment and Representation in a Patient-Centered Social Network

Jed R. Brubaker, Caitlin Lustig, & Gillian R. Hayes

We examine the patient networking site PatientsLikeMe relative to current trends in medicine toward patient-centered care and empowerment. We focus on both patient and institutional demands for personal medical data. Given PatientsLikeMe’s mixture of social networking and health management tools, we consider the role of online health communities in the changing patient/provider relationship, and the use of patient-provided medical data.